ACTION Project Resources

Below is a list of outputs and links created during the length of the project. Where permission has been given, you are free to download any of the documents listed on this page.

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Peer-reviewed publications
  1. Content analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention: insights gained from the ACTION trial. Zwakman M, van Delden JJM, Caswell G, Deliens L, Ingravallo F, Jabbarian LJ, Johnsen AT, Korfage IJ, Mimić A, Arnfeldt CM, Preston NJ, Kars MC; ACTION consortium. Support Care Cancer. 2019 Jul 5. doi: 10.1007


  1. Assessing Emotional Functioning with Increased Power: Relative Validity of a Customized EORTC Short Form in the International ACTION Trial. Jabbarian LJ, Groenvold M, Petersen MA, Christensen CA, Deliens L, van der Heide A, Kars MC, Miccinesi G, Payne S, Wilcock A, Korfage IJ; ACTION consortium. Value Health. 2019 Jan;22(1):92-98. doi: 10.1016/j.jval.2018.07.002. Epub 2018 Aug 20.


  1. Advance care planning–a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study. Rietjens JA, Korfage IJ, Dunleavy L, Preston NJ, Jabbarian LJ, Christensen CA, de Brito M, Bulli F, Caswell G, Červ B, van Delden J, Deliens L, Gorini G, Groenvold M, Houttekier D, Ingravallo F, Kars MC, Lunder U, Miccinesi G, Mimić A, Paci E, Payne S, Polinder S, Pollock K, Seymour J, Simonič A, Johnsen AT, Verkissen MN, de Vries E, Wilcock A, Zwakman M, van der Heide A. BMC Cancer. 2016 Apr 8;16:264. doi: 10.1186/s12885-016-2298-x.


  1. Advance care planning: A systematic review about experiences of patients with a life-threatening or life-limiting illness. Zwakman M, Jabbarian LJ, van Delden J, van der Heide A, Korfage IJ, Pollock K, Rietjens J, Seymour J, Kars MC.


  1. Advance care planning for patients with chronic respiratory diseases: a systematic review of preferences and practices. Jabbarian LJ, Zwakman M, van der Heide A, Kars MC, Janssen DJA, van Delden JJ, Rietjens JAC, Korfage IJ. 2018 Mar;73(3):222-230. doi: 10.1136/thoraxjnl-2016-209806. Epub 2017 Nov 6. Review.


  1. Impact of advance care planning on end-of-life management. Lunder Urška, Cerv Branka, Kodba-Ceh Hana. Current Opinion in Supportive and Palliative Care, 11(4), 293-298. Doi:10.1097/SPC.0000000000000306
Submitted manuscripts

Does advance care planning benefit patients with advanced cancer? Results from the European six country, cluster-randomized ACTION trial. Korfage IJ, Carreras G, Arnfeldt CM, Billekens P, Bramley L, Briggs L, Bulli F, Caswell G, Červ B, van Delden JJM, Deliens L, Eecloo K, Gorini G, Groenvold M, Hammes B, Ingravallo F, Jabbarian LJ, Kars MC, Kodba-Čeh H, Lunder U, Miccinesi G, Mimić A, Ozbič , Payne SA, Polinder S, Pollock K, Preston NJ, Seymour J, Simonič A, Thit Johnsen A, Toccafondi A, Verkissen MN, Wilcock A, Zwakman M, van der Heide A* & Rietjens JAC1 shared last authorship. Under review BMJ.

Coping Strategies of Patients with Advanced Lung or Colorectal Cancer in Six European Countries: Insights from the ACTION Study. Jabbarian LJ, Korfage IJ, Červ B, van Delden JJM, Deliens L, Miccinesi G, Payne S, Thit Johnsen A, Verkissen MV, Wilcock A, van der Heide A, Rietjens JAC, on behalf of the ACTION consortium. Under revision, Psycho-oncology.  

Unraveling Patients’ Readiness in Advance Care Planning Conversations: A Qualitative Study as Part of the ACTION Study. Zwakman M, Milota M, van der Heide A, Jabbarian L, Korfage IJ, Rietjens JAC, van Delden JJM, Kars MC. Under review, Journal of Clinical Oncology.

Trained Facilitators’ Experiences with Structured Advance Care Planning Conversations in Oncology: An International Focus Group Study within the ACTION trial. Marieke: Zwakman, M., K. Pollock, F. Bulli, G. Caswell, B. Cerv, J. J. M. van Delden, L. Deliens, A. Van der Heide, L. Jabbarian, H. Koba-Ceh, U. Lunder, G. Miccinesi, C. Moller Arnfeldt, J. Seymour, A. Toccafondi, M. N. Verkissen, M. C. Kars and On behalf of the Action Consortium (2019). BMC Cancer under revision.


Teachers’ opinions and experiences about the training for the advance care planning intervention in ACTION study in six European countries. Kodba-Čeh H, Lunder U

Advance care planning intervention fidelity in ACTION study in six European countries. Lunder U, Červ B

On hope in cancer patients and their families in advance care planning. Experiences from four European countries in ACTION study. Kodba-Čeh H, Polock K, IT, NL,… Lunder U


Advance Care Planning in Practice: Experiences of Patients and Healthcare Professionals. Marieke Zwakman. 21-05-2019. Utrecht University. ISBN 978-94-92679-87-1.

Well-Being and Preferences of Patients Near the End of Life. Lea Jabbarian. 12-06-2019. Erasmus University Rotterdam. ISBN 978-94-6361-267-8.